The Australian Haemochromatosis Registry is a national collection of de-identified data from people in Australia with haemochromatosis. Haemochromatosis is a genetic disorder influencing dietary iron absorption, which if left untreated, can lead to serious chronic health problems.
The success of the Australian Haemochromatosis Registry depends on the willingness of individuals to join and allow their de-identified data to be used by researchers. The more people register, the richer the pool of information available to researchers.
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